Fun Run for Lydia

The Fun Run for Lydia, benefiting Cure Sanfilippo Foundation, is Saturday, November 23 from 10am-1pm at Northwestern State University. Register by Nov. 1 to guarantee a tshirt.

 All ages are invited to walk, jog, or dance through showers of safe color powder. Participation helps fund research to find a treatment or cure for children with Sanfilippo Syndrome like Natchitoches-native Lydia Rachal and her family.

The Rachal family and their supporters have been relentlessly fundraising to advance critical research for a cure since Lydia was diagnosed earlier this year. All proceeds benefit the Cure Sanfilippo Foundation.

Sanfilippo Syndrome is a terminal, neurodegenerative disease that causes children to lose all the skills they’ve gained. These children suffer seizures and movement disorders, experience pain and suffering, and then die in their teens. Currently, there is no FDA-approved treatment or cure.

After the run, enjoy bounce houses, delicious gumbo, and music from the DJ. With lawn games and activities for the whole family, there’s something for everyone.

Registration includes entry in the color fun run, gumbo, and event t-shirt.